A Place for Caregivers to Share Your Thoughts

Click the "Post" button if you would like to share a tip, ask a question, offer a comment about the site, or leave a note of encouragement to other caregivers.



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April 5th 2016
02:35:42 PM
First name  

Zoe

What type of tumor does the patient have?  

Breast cancer metastases

Where are you from?  

MA

How did you hear about this site?  

Google

Your comment:  

I\'ve relied heavily on this site throughout the course of my daughter\'s illness, but now none of the links work!! What happened?? Please tell me you\'re not gone forever. This is a great site and has b

   
March 27th 2016
09:17:25 AM
First name  

David

What type of tumor does the patient have?  

GBM 4

Where are you from?  

Missouri

How did you hear about this site?  

Google search

Your comment:  

My wife, age 74 with mild dementia, was diagnosed with GBM 4 on 12/20/15 after surgery for tumor. She seems to be going down hill quickly even with radiation/chemo treatment. Have entered home hospic

   
March 25th 2016
11:33:16 AM
First name  

christine

What type of tumor does the patient have?  

glioblastoma

Where are you from?  

bowling green, ky

How did you hear about this site?  

google

Your comment:  

I\'m a radiation therapist. Looking for answers...for my patients. Thank you. Thank you.

   
March 7th 2016
08:33:15 AM
First name  

Jim

What type of tumor does the patient have?  

Grade 4 GBM

Where are you from?  

Florida

How did you hear about this site?  

Internet

Your comment:  

Thank you for your website. The information. Has been very helpful. My wife and I started this journey in 2012 and now it seems the journey is coming to an end. My thoughts and prayers go out to all w

   
January 12th 2016
07:10:26 PM
First name  

Benjamin

What type of tumor does the patient have?  

GBM4

Where are you from?  

CT

How did you hear about this site?  

google

Your comment:  

Its been a year since my dad died. Reflecting back to this time last year, I remembered that your website was the only one that provided concrete, easy to read, and accurate information. Thanks again.

   
December 10th 2015
01:03:43 PM
First name  

Sophie

What type of tumor does the patient have?  

GBM4

Where are you from?  

Liverpool, England

How did you hear about this site?  

Recommendation

Your comment:  

Invaluable help. Thank you.

   
December 9th 2015
10:42:54 PM
First name  

Catherine

What type of tumor does the patient have?  

GBM

Your comment:  

Your preview button does not appear to work.

   
November 14th 2015
12:12:13 PM
First name  

Susan

What type of tumor does the patient have?  

GBM

Where are you from?  

Parish, NY

How did you hear about this site?  

just happened upon a reference to it from another site

Your comment:  

I have printed out all the information from your site so I can read it at my leisure. My mom was diagnosed in July 2015. It all started because her Diabetes was not under control and rolled into hav

   
October 12th 2015
11:50:07 AM
First name  

Garna Bradley

What type of tumor does the patient have?  

GBM

Where are you from?  

Indiana

How did you hear about this site?  

searching

Your comment:  

Hi there my name is Garna and my Dad is just over a month from his devastating diagnosis of this huge GBM tumor that will take his life. If anyone is willing to communicate with me I\'d so appreciate y

   
September 2nd 2015
04:33:59 AM
First name  

Ruth

What type of tumor does the patient have?  

GBM

Where are you from?  

Houston

How did you hear about this site?  

google

Your comment:  

Seems like dad is in the end stages of this Horrible monster. Dx Feb 2015 has a large butterfly shaped tumor taking up 50% of his brain, Me and my family have been devastated by this disease, Tumor de

   


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